UA-21812230-1 Rare Perspectives

Rare Perspectives

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Get Motivated with Jordan Martin, Personal Trainer and Hemophilia B Patient

Do you need a little motivation? Inspiration? On this episode of the Rare Perspectives podcast, we certainly felt both motivated and inspired after speaking with returning guest Jordan Martin, Hemophilia B patient, personal trainer, state champion wrestler, and inspirational voice in the chronic disease community. Tune in for some words of wisdom from Jordan. We hope you enjoy!

Please share with your family, friends and network. We also invite you to write a review and follow the podcast!

Stay Connected with PSI:

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit: www.patientservicesinc.org

Disability Help, SSDI, and Representing Chronically Ill Patients with Terry Staletovich

As we kick off a new season of Rare Perspectives, listen to our conversation with Terry Staletovich, attorney for ACCESS, PSI’s legal program that helps and represents chronically ill patients in the complex field of healthcare and insurance. In this episode, we dive into disability help and SSDI assistance, COVID’s effect on the legal process, patient testimonies, and water sports. Hope you enjoy!

 

For ACCESS program info, visit: https://www.patientservicesinc.org/patients/access-program

 

Please share with your family, friends and network. We also invite you to write a review and follow the podcast!

 

Stay Connected with PSI:

Facebook: www.facebook.com/PSI4Patients/

Twitter: www.twitter.com/PSI4Patients

LinkedIn: www.linkedin.com/company/patient-services-inc  

Instagram: @psi4patients  

 

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit: www.patientservicesinc.org

EP 23: Interview with Gwen Cooper, CEO of PSI

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

On this episode, we are honored to welcome PSI’s new CEO, Gwen Cooper.

As CEO of PSI, Cooper brings over 20 years of executive nonprofit experience in all facets of healthcare, from leading statewide voluntary health organization fundraising and advocacy platforms to serving as an executive in provider delivery systems.

We do hope you enjoy our conversation. Please share with your family, friends and network. We also invite you to write a review. Together, let's reach the world, inspire others, and help make a difference for those within as well as outside the rare disease community.

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Rare Perspectives EP 22: Amy Jackson, Insurance Q&A

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

On this episode, we welcome Amy Jackson who serves as a PSI patient access specialist. Listen in as Amy answers some of the most commonly asked questions about insurance coverage. You won't want to miss this important episode.

We do hope you enjoy our conversation. Please share with your family, friends and network. We also invite you to write a review. Together, let's reach the world, inspire others, and help make a difference for those within as well as outside the rare disease community.

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Rare Perspectives EP 21: Lisa Wright Returns, Fabry Disease

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

On this episode, we welcome our dear friend Lisa Wright back to the Rare Perspectives podcast to share her story.

At the age of 49, Lisa’s lifelong mystery had finally been solved. It was just 10 months earlier that her twin sister was diagnosed with the very same rare disease. And although the discovery has brought closure to so many unanswered questions, it has also led to a thousand more.

We hope you enjoy our conversation. Please share with your family, friends and network. We also invite you to write a review. Together, let's reach the world, inspire others, and help make a difference for those within as well as outside the rare disease community.

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Rare Perspectives EP 20: Nathan Thomson, Protecting Charities and Urgent Call to Action

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

This week on Rare Perspectives, we caught up with PSI’s Nathan Thomson, who works with our Government relations and advocacy team. In this episode, you’ll get to learn more about not only who Nathan is and what brought him to PSI, but also about a very critical piece of legislation that we need your help with. You can take action here: https://bit.ly/2BiZppQ

We hope you enjoy!

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Rare Perspectives EP19: Amee Ireland Returns #HAE

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

On this episode, our dear friend, Amee Ireland, PSI patient and advocate returns to the podcast to discuss life at home, her diagnosis, and how she saved her son's life, which led to his diagnosis of HAE, as well.

Amee is a bright light in this world who shines a light on hope for all to see from within the rare disease community and out. We hope you enjoy!

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Rare Perspectives EP 18: Bill Bellnap, Idiopathic Pulmonary Fibrosis patient

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

On this episode, meet Bill Bellnap. At 76, Bill was recently diagnosed with Idiopathic Pulmonary Fibrosis. But Bill is not alone. Surrounded by his wife of 52 years and his loving family, Bill has all he needs to fight this battle. On this episode of Rare Perspectives, we invite you, the listener, into a conversation about life, love, rare disease, patient assistant charities, and so much more.

We hope you enjoy our conversation.

Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice.

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Rare Perspectives EP 17: Tony Castaldo, co-founder of HAEi

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

On this episode, meet Tony Castaldo. Tony is a co-founder of HAEi and has been President since the organization’s inception. He also serves as the President of the US HAE Association and on the Board of Directors of the National Organization for Rare Diseases. He dedicated much of his life to driving improvement in HAE care and remains highly motivated by the challenge of global HAE advocacy.

We hope you enjoy our conversation.

Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice.

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

Rare Perspectives EP 16: Part 2 of 2 With Broadway Actor Matthew Farcher

Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.

This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!

On this episode, we conclude our conversation with Broadway actor Matthew Farcher (Pretty Woman Broadway Production, Beauty and the Beast National Tour) as he shares his rare perspective on living life with rare disease and how his diagnosis story has informed his life and career. During our conversation, Matthew shares with us about how he learned of his rare disease, his acting career, baseball, and the power of family. This is part two of a two part series with Matt.

We hope you enjoy our conversation.

Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice.

Stay Connected with PSI! Facebook: www.facebook.com/PSI4Patients/ Twitter: twitter.com/PSI4Patients LinkedIn: linkedin.com/company/patient-services-inc Instagram: instagram.com/psi4patiuents

Are you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org

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